EURORDIS
EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 1000 rare disease patient organisations from 74 countries that work together to improve the lives of over 300 million people living with a rare disease globally.
EJPRD Training for patient representatives and advocates on leadership and communication skills
The International Course “Training for patient representatives and advocates on leadership and communication skills” is part of a series of training activities proposed by the EJP RD. EJP RD is a European Commission funded project (Grant Agreement 825575, 2019 – 2023) with the goal to create a comprehensive sustainable ecosystem, allowing a virtuous ...EURORDIS Open Academy Digital School
The EURORDIS Digital School aims to empower rare disease patient advocates to use digital communication tools to improve the strategic outreach and community-building capacities of their organisations.EURORDIS Open Academy Leadership School
The EURORDIS Leadership School launched in March 2019 to provide ePAG (European Patient Advocacy Group) advocates with the knowledge and expert skills needed to be valued partners in European Reference Networks (ERNs).EURORDIS Open Academy School on Medicines Research & Development
The EURORDIS Open Academy School on Medicines Research & Development aims to provide rare disease patient advocates with the knowledge and skills needed to become experts in medicines research and development. Over 20 experts, from across all rare disease stakeholders, deliver the training each year. The topics covered include clinical trials methodology, ...EURORDIS Open Academy School on Medicines Research & Development
The EURORDIS Open Academy School on Medicines Research & Development aims to provide rare disease patient advocates with the knowledge and skills needed to become experts in medicines research and development. Over 20 experts, from across all rare disease stakeholders, deliver the training each year. The topics covered include clinical trials methodology, ...EURORDIS Open Academy School on Scientific Innovation & Translational Research
The EURORDIS Open Academy School on Scientific Innovation & Translational Research aims of deepening patient representatives’ understanding of how pre-clinical research translates into real benefits for rare disease patients. The training equips participants with knowledge and skills so they are empowered to effectively participate in discussions with ...EURORDIS Open Academy School on Scientific Innovation & Translational Research
The EURORDIS Open Academy School on Scientific Innovation & Translational Research aims of deepening patient representatives’ understanding of how pre-clinical research translates into real benefits for rare disease patients. The training equips participants with knowledge and skills so they are empowered to effectively participate in discussions with ...Open Academy School 2023
This is a test badge/certificate for the OA team.
